This week I’d like to update you about my health and ask for your prayers. Most of you know that I’ve been diagnosed with pulmonary fibrosis, a terminal lung disease.
Two weeks ago I visited my pulmonologist at University of California, San Francisco. I was a little nervous, because my last appointment 6 months ago was very discouraging. I had worsened significantly. This time I got better news…no change since the last visit, which was encouraging. My doctor is in my corner, and keeps referring me to the lung transplant team. I keep getting a “no” because of a unique situation.
I developed pulmonary fibrosis as a rare complication from the chemotherapy and radiation I received to treat breast cancer 4 years ago. Now that was a low blow! Centers who perform lung transplants require a patient to be cancer free for 5 years before they will consider you for a transplant (I’m 4 years cancer free). As you can imagine, this constraint has been very difficult to deal with, hoping I’ll still be alive at the 5-year mark.
This time, however, when my doctor referred me, the transplant team said, “yes!” This doesn’t mean they will admit me for the in-depth testing that is required, or put me on the list. It just means they are willing to schedule an appointment, and talk with me. But…it is a great first step.
There are things I need to do to get myself in better shape, such as eating healthier, exercising more, and losing some weight. I’ve known that making these healthy changes would be good for me, but now I feel very motivated. It’s so nice to have a health goal to work toward.
I decided to ask for support and prayers, so I did a facebook live video to share the news and ask for prayer. You can watch here if you’d like. I am so amazed by the amount of love, prayers and support I received. It encourages me and strengthens me for the road ahead. I share more about specifically what I’d like prayers for in the video below.
To be honest, the process of considering a lung transplant scares me a lot. #pulmonaryfibrosis #ILD #lungtransplant #IPF Click To Tweet
I’ve decided to get as much information as I can, and take the time I need to process everything I learn. I know there is a possibility that I may not be deemed a suitable candidate, but it is worth a try!
Thanks so much for reading about my health update. I’ll keep you posted on how everything goes. I appreciate your love, support and prayers.
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