Health Update and Plans for ???

Hello Everyone!

I wanted to share the latest about my health, and fill you in on the way God is nudging my heart.

Health update

I’m almost through with all the testing to be considered for a lung transplant. I just have one more test to do in the hospital in San Francisco and then I’ll be done! Whew! It has been a long process, and I am so grateful to be considered. My transplant team says if all goes well with this last test, the plan is to put me on the transplant list in January.

They explained that they would like me to get to the five-year cancer free mark (which is January) before putting me on the list. If my lungs get significantly worse before then they will list me sooner. I’m happy about this plan, because I have six more months to accomplish some things that are important to me before having to be on call for “the call.”

God’s prodding

In the meantime, God has been burdening me to write a book for fellow pulmonary fibrosis patients and their families. This will be my fourth book, and my pattern is to run kicking and screaming when God prods me to write a book. This time I decided to listen. I believe God is giving me this window of opportunity to get it done. I have it half done, and plan to release it on November 15th. It’s scary to share the date it will be released because it makes it real and I need to finish it!

I started to write this book after experiencing how awful it was to figure out how to deal with this disease pretty much by myself. When I was diagnosed four years ago I got no information from my doctor, and the information on the internet was either incorrect or shared in terrifying ways. I also noticed there was very little information to help patients deal with the emotional turmoil of being suddenly being diagnosed with a terminal illness.

Being diagnosed with Pulmonary Fibrosis is not for the faint of heart. It is a rough road full of fears, losses and unknowns. I’m enjoying giving solid information to fellow patients about how to navigate this disease along with ways to be a compassionate friend to yourself along the way. Being a good friend to yourself makes this difficult journey a little easier. It’s a rough road — lots of up and downs, tears, disbelief and trying to adjust.

Being a good friend to myself on this journey has made a huge difference to me. Click To Tweet

It eases the losses and fears I experience when I am able to treat myself with the kindness and compassion I would give a friend.

Most of us, terminal illness or not, get down on ourselves for the struggles, difficulty adjusting and discouragement we feel. It is normal to wish we handled things better, but being hard on ourselves makes us feel even worse. I know this is a book for a very narrow audience and not something you would be interested in. I just wanted to keep you in the loop! It is much needed and I’m determined to use this tragedy in my life for good, God willing. I’m trusting God to give me the words, strength and stamina to finish it. I’d appreciate your prayers.

I’d love to hear from you!

What jumped out at you from this post? Is God prodding you to do something? What has happened in the past when you’ve followed His leading even though it didn’t seem to make sense?

Please leave a comment below and share with those who could benefit via e-mail or on social media.

20 thoughts on “Health Update and Plans for ???

  1. I am so blessed by your news! Thank you so much for allowing God to use you to teach us how to love and care for ourselves the way God does! You are such an inspiration to me and many many others! What a blessing this new book will be!
    Your post was very timely and encouraging to me this morning. I am facing more very invasive surgery on my leg – with no promise that I will ever be 100%. This has been and is continuing to be quite a journey – and God’s story in my life of His Love for me, which I will forever and always share with others. He continues to show up in big big ways in this trial that I would not trade for anything! Yet, I am so human and literally have the feeling of wanting to puke over the thought of going thru another major surgery. So, thank you for showing us all a God that is Grace and Truth! I am learning to love and allow myself to be human :). God loves us in our weakness and when we choose to let him into our life He alone will lift us up! Higher than we can ever imagine!
    Much Love, Jeonne Talbot

    1. Dear Jeonne,
      Thanks so much for your encouragement. I am SO SORRY you are facing ANOTHER huge surgery. Ugh! At the same time I am so encouraged by how God is showing up in your life all over the place. I love that you are learning to love and allow yourself to be human. Yay! I will keep you in my prayers.

  2. Hi Kim, what good news- the book AND your continuation of the testing and God willing, being on “the list”. What jumped out at me was “It is normal to wish we handled things better, but being hard on ourselves makes us feel worse.” Yes! Yesterday, I had an opportunity to be patient with myself and took it as I am adjusting to some changes. They’re good changes, but surprisingly harder for me than I would have expected. I quickly saw the crossroad where I could either scold myself or be understanding. Yesterday was an easy choice and a lot of that has to do with your writing and modeling. Thank you!

    1. Thanks so much for your kind words and appreciation Katie! I’m so glad my post was an encouragement to you as you give yourself grace as you adjust to your changes. So wonderful you chose to be compassionate with yourself when facing a crossroad. Excellent!

  3. Kim! This is great news! We will continue to pray for you as you walk through the transplant team’s thorough process. We are rooting for you!

    And I’m glad you are writing this book! These scary diagnoses often aren’t accompanied with the emotional – or even logistical/practical – help and support that a person needs. You are resourceful and have people along side you, but not everyone does. What a help this will be to others!

  4. Only one more test to go! Very specific prayers will cover you through the target date in January so you can get on that transplant list.
    To think that throughout this you were prompted and then obeyed the call to write this new book. It definitely needed to be written to provide proper information and encouragement to others with PF. Prayers will also cover the process for your “words, strength and stamina” as you finish the book by the target date for publication. I believe that any book that you write should be suggested reading for everyone. Your faith, wisdom, experience and gentleness in how you share you knowledge would inspire any reader. I am so proud of you.
    Love and hugs to you and Dave.

    1. Dear Ann,
      Thanks so much for your prayers and encouragement. You are so sweet to say my words would encourage those outside the pulmonary fibrosis community. I know God will give me all I need. Thanks for blessing me today.

  5. We continue to follow your health updates and rejoice that hope draws near. Just the words, “my transplant team” make me smile. Big. This book is going to be a hard-won gift to those suffering in the dark. God bless the writing and may you have unexpected strength to write.

    1. Dear Wendy,
      Thanks so much for your lovely words of encouragement. It is so obvious that God is in the middle of this. I’ve known my mission is to encourage others to be compassionate with themselves with God’s love. I just realized God has fine tuned my mission to specifically minister to the pulmonary fibrosis community. Dave asked me how many Christian therapists I knew who were also an author, had PF, and wrote about self-compassion? I said, “Oh.” Wow, took me awhile! Thanks for being in my corner!!!

  6. Certainly, this is GOD 🙂
    Your books have blessed so many, and I doubt there are many available about pulmonary fibrosis, and even if there are some, yours will be filled with personal insights that will be valuabe where straight text books may not.

    Prayers and love, and eager anticipation for a ” new you” sometime after January, so your life and ministry can keep on spreading the good news for many ,many years to come.

    Love, Mary.

  7. What jumped out at me?
    First, God’s faithfulness but then YOU! YOU jumped out! I am continually encouraged by your willingness, your strength, your compassion for yourself and others and your determination to never give up!! To keep doing good! Thank you Jesus! Thank you, Kim! May God continue to give you His grace and peace multiplied as you strive to model a life of obedience and freedom in Christ. I’ll be praying…

  8. So wonderful to hear the news, Kim! I have continued to pray for you and will keep doing so as you continue with the lung transplant process. That’s so exciting that God is prompting you to write a book!!!! It will bless and help many others. 🙂

  9. Hi Kim,
    Kathy Hodge sent me your latest blog. I just wanted to touch base with you as the wife and care provider to my husband, Paul, who has PF and had a single lung transplant five years ago. We’ve traveled down the road with our eyes fixed on Jesus, through tears and distractions, ups and downs. Now we are involved in the transplant community in San Diego. We know it can be a lonely journey, but I just want to encourage you to continue your ministry. Please feel free to contact me if you have any questions, or just want to connect with another who is walking on a similar PF path.

    So breathe well, rest before you tire, and don’t shake hands with anyone…a fist bump will do, physically leave if there’s someone obviously sick around you (even in church!J. Be thankful for the day, and pray for your donor family❤️❤️🙏🏻.

    Praying for the strength and peace of the Lord to be with you on your journey.

    1. Thanks so much Sue…you have really been through it, hanging onto Jesus. I so appreciate you reaching out and offering support and wisdom. I will keep your info and contact you in a few months, after my book is released. Thanks so much!

  10. Kim so glad to hear your news. As a nurse I can say this book will be AWESOME for patients. Also the audience may be larger as what you said would be helpful to all patients regardless of illness type. Praying grace for the writing and blessings for the readers.

    1. Thanks so much Bev…so appreciate your encouragement with all your expertise as a nurse. It would be amazing if a larger audience is helped too! Praise God…I’ll leave that in his hands to handle! Thanks for taking the time to encourage me.

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