I wanted to share the latest about my health, and fill you in on the way God is nudging my heart.
I’m almost through with all the testing to be considered for a lung transplant. I just have one more test to do in the hospital in San Francisco and then I’ll be done! Whew! It has been a long process, and I am so grateful to be considered. My transplant team says if all goes well with this last test, the plan is to put me on the transplant list in January.
They explained that they would like me to get to the five-year cancer free mark (which is January) before putting me on the list. If my lungs get significantly worse before then they will list me sooner. I’m happy about this plan, because I have six more months to accomplish some things that are important to me before having to be on call for “the call.”
In the meantime, God has been burdening me to write a book for fellow pulmonary fibrosis patients and their families. This will be my fourth book, and my pattern is to run kicking and screaming when God prods me to write a book. This time I decided to listen. I believe God is giving me this window of opportunity to get it done. I have it half done, and plan to release it on November 15th. It’s scary to share the date it will be released because it makes it real and I need to finish it!
I started to write this book after experiencing how awful it was to figure out how to deal with this disease pretty much by myself. When I was diagnosed four years ago I got no information from my doctor, and the information on the internet was either incorrect or shared in terrifying ways. I also noticed there was very little information to help patients deal with the emotional turmoil of being suddenly being diagnosed with a terminal illness.
Being diagnosed with Pulmonary Fibrosis is not for the faint of heart. It is a rough road full of fears, losses and unknowns. I’m enjoying giving solid information to fellow patients about how to navigate this disease along with ways to be a compassionate friend to yourself along the way. Being a good friend to yourself makes this difficult journey a little easier. It’s a rough road — lots of up and downs, tears, disbelief and trying to adjust.Being a good friend to myself on this journey has made a huge difference to me. Click To Tweet
It eases the losses and fears I experience when I am able to treat myself with the kindness and compassion I would give a friend.
Most of us, terminal illness or not, get down on ourselves for the struggles, difficulty adjusting and discouragement we feel. It is normal to wish we handled things better, but being hard on ourselves makes us feel even worse. I know this is a book for a very narrow audience and not something you would be interested in. I just wanted to keep you in the loop! It is much needed and I’m determined to use this tragedy in my life for good, God willing. I’m trusting God to give me the words, strength and stamina to finish it. I’d appreciate your prayers.
I’d love to hear from you!
What jumped out at you from this post? Is God prodding you to do something? What has happened in the past when you’ve followed His leading even though it didn’t seem to make sense?
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